[R01] Examining reproductive health outcomes in women with disabilities
Ente: Eunice Kennedy Shriver National Institute of Child Health and Human Development
Scadenza: 2031-06-30
Importo max: $536,246
Paese: US
Descrizione
PROJECT SUMMARY
Women with disabilities (WWD) have the same reproductive health (RH) needs as women without disabilities,
yet they consistently face barriers to health information, access to RH services, and the receipt of high-quality
care. These barriers place WWD at elevated risk for sexually transmitted infections, unintended pregnancy,
pregnancy complications, and adverse maternal and infant outcomes. Despite growing recognition of these
challenges, RH remains a deeply underexamined area for this population. Social determinants of health
(SDOH)—including economic stability, education, neighborhood environment, and health care access—exert a
significant influence on RH outcomes. This influence is especially pronounced among WWD, yet there is
limited understanding of how SDOH shape RH across the preconception, pregnancy, and postpartum
continuum for WWD. Importantly, RH experiences are not only shaped by disability, but also by other factors
such as geography (e.g., rurality), economic conditions, and educational access—factors that may compound
barriers to timely, appropriate care. To address these knowledge gaps, this study will employ a mixed method
approach to examine the association between SDOH and RH outcomes among people with and without
disabilities. Quantitative analyses will use population-based data from the CDC’s Pregnancy Risk Assessment
Monitoring System (PRAMS), including newly added SDOH measures and standardized disability questions.
These data provide a unique opportunity to investigate how structural and individual-level factors influence RH
outcomes at a national level. Qualitative interviews with WWD will complement the quantitative findings by
exploring lived experiences with RH care, including facilitators and obstacles across a range of disability types,
life contexts, and community settings. This approach will provide critical insight into aspects of RH that cannot
be captured through survey data alone. This research aligns closely with NICHD’s Strategic Plan by
addressing key priorities in reproductive health and improving outcomes for persons with disabilities. Findings
will lay the groundwork for future prevention efforts, including intervention studies to adapt, tailor, and test
existing evidence-based strategies to expand RH care access, improve quality, and ultimately promote
maternal and infant health and wellbeing for WWD.
Istituzione: UNIVERSITY OF VIRGINIA
PI: JEANNE L ALHUSEN
Progetto: 1R01HD117164-01A1
Settori: Eunice Kennedy Shriver National Institute of Child Health and Human Development
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